The use of focus groups to develop a culturally relevant quality of life tool for lymphatic filariasis in Bangladesh
Identifieur interne : 003052 ( Main/Exploration ); précédent : 003051; suivant : 003053The use of focus groups to develop a culturally relevant quality of life tool for lymphatic filariasis in Bangladesh
Auteurs : Lynne Zeldenryk ; Marion Gray ; Susan Gordon ; Rick Speare ; Moazzem Hossain [Bangladesh]Source :
- Quality of Life Research [ 0962-9343 ] ; 2013.
Descripteurs français
- KwdFr :
- Adulte, Adulte d'âge moyen, Agents de santé communautaire, Bangladesh, Besoins et demandes de services de santé, Compétence culturelle, Compétence informationnelle en santé, Corps médical, Documentation (), Documentation (normes), Enquêtes et questionnaires (normes), Femelle, Filariose lymphatique (), Filariose lymphatique (psychologie), Groupes focalisés (utilisation), Humains, Jeune adulte, Mâle, Personnel de recherche, Qualité de vie, Recherche qualitative, Relations entre professionnels de santé et patients, Renforcement des capacités (), Reproductibilité des résultats, Sujet âgé.
- MESH :
- normes : Documentation, Enquêtes et questionnaires.
- psychologie : Filariose lymphatique.
- utilisation : Groupes focalisés.
- Adulte, Adulte d'âge moyen, Agents de santé communautaire, Bangladesh, Besoins et demandes de services de santé, Compétence culturelle, Compétence informationnelle en santé, Corps médical, Documentation, Femelle, Filariose lymphatique, Humains, Jeune adulte, Mâle, Personnel de recherche, Qualité de vie, Recherche qualitative, Relations entre professionnels de santé et patients, Renforcement des capacités, Reproductibilité des résultats, Sujet âgé.
- Wicri :
- geographic : Bangladesh.
English descriptors
- KwdEn :
- Adult, Aged, Bangladesh, Capacity Building (methods), Community Health Workers, Cultural Competency, Documentation (methods), Documentation (standards), Elephantiasis, Filarial (psychology), Elephantiasis, Filarial (therapy), Female, Focus Groups (utilization), Health Literacy, Health Services Needs and Demand, Humans, Male, Medical Staff, Middle Aged, Professional-Patient Relations, Qualitative Research, Quality of Life, Reproducibility of Results, Research Personnel, Surveys and Questionnaires (standards), Young Adult.
- MESH :
- geographic : Bangladesh.
- methods : Capacity Building, Documentation.
- psychology : Elephantiasis, Filarial.
- standards : Documentation, Surveys and Questionnaires.
- therapy : Elephantiasis, Filarial.
- utilization : Focus Groups.
- Adult, Aged, Community Health Workers, Cultural Competency, Female, Health Literacy, Health Services Needs and Demand, Humans, Male, Medical Staff, Middle Aged, Professional-Patient Relations, Qualitative Research, Quality of Life, Reproducibility of Results, Research Personnel, Young Adult.
Abstract
The purpose of this study was to conduct focus groups to operationalise the construct of quality of life (QOL) for people living with lymphatic filariasis (LF) in Bangladesh to develop culturally valid items for a Bangladeshi LF QOL tool.
Ten focus groups were conducted with a stratified purposeful sample (
Forty-three constructs were identified through the focus groups that had not previously been identified in the literature, including constructs relating to environmental supports and barriers, activities, participation and psychological impacts. There were marked differences between the impacts reported by different groups, highlighting the need for a comprehensive purposive sample. In particular, contributions from participants who would not traditionally be viewed as “experts” were vital.
The use of focus groups strongly contributed to the operationalisation of the concept of QOL in Bangladesh for people living with LF. Use of literature review or expert opinion alone would have missed vital constructs.
Url:
DOI: 10.1007/s11136-013-0455-0
PubMed: 23793443
PubMed Central: 3929034
Affiliations:
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Le document en format XML
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relevant quality of life tool for lymphatic filariasis in Bangladesh</title><author><name sortKey="Zeldenryk, Lynne" sort="Zeldenryk, Lynne" uniqKey="Zeldenryk L" first="Lynne" last="Zeldenryk">Lynne Zeldenryk</name><affiliation><nlm:aff id="Aff1">Occupational Therapy, School of Public Health, Tropical Medicine and Rehabilitation Sciences, James Cook University, Douglas, QLD 4811 Australia</nlm:aff><wicri:noCountry code="subfield">QLD 4811 Australia</wicri:noCountry></affiliation></author><author><name sortKey="Gray, Marion" sort="Gray, Marion" uniqKey="Gray M" first="Marion" last="Gray">Marion Gray</name><affiliation><nlm:aff id="Aff2">Occupational Therapy, University of the Sunshine Coast, Sippy Downs, QLD Australia</nlm:aff><wicri:noCountry code="subfield">QLD Australia</wicri:noCountry></affiliation></author><author><name sortKey="Gordon, Susan" sort="Gordon, Susan" uniqKey="Gordon S" first="Susan" last="Gordon">Susan Gordon</name><affiliation><nlm:aff id="Aff1">Occupational Therapy, School of Public Health, Tropical Medicine and Rehabilitation Sciences, James Cook University, Douglas, QLD 4811 Australia</nlm:aff><wicri:noCountry code="subfield">QLD 4811 Australia</wicri:noCountry></affiliation></author><author><name sortKey="Speare, Rick" sort="Speare, Rick" uniqKey="Speare R" first="Rick" last="Speare">Rick Speare</name><affiliation><nlm:aff id="Aff1">Occupational Therapy, School of Public Health, Tropical Medicine and Rehabilitation Sciences, James Cook University, Douglas, QLD 4811 Australia</nlm:aff><wicri:noCountry code="subfield">QLD 4811 Australia</wicri:noCountry></affiliation></author><author><name sortKey="Hossain, Moazzem" sort="Hossain, Moazzem" uniqKey="Hossain M" first="Moazzem" last="Hossain">Moazzem Hossain</name><affiliation wicri:level="1"><nlm:aff id="Aff3">Institute of Allergy and Clinical Immunology of Bangladesh, Dhaka, Bangladesh</nlm:aff><country xml:lang="fr">Bangladesh</country><wicri:regionArea>Institute of Allergy and Clinical Immunology of Bangladesh, Dhaka</wicri:regionArea><wicri:noRegion>Dhaka</wicri:noRegion></affiliation></author></analytic><series><title level="j">Quality of Life Research</title><idno type="ISSN">0962-9343</idno><idno type="eISSN">1573-2649</idno><imprint><date when="2013">2013</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adult</term><term>Aged</term><term>Bangladesh</term><term>Capacity Building (methods)</term><term>Community Health Workers</term><term>Cultural Competency</term><term>Documentation (methods)</term><term>Documentation (standards)</term><term>Elephantiasis, Filarial (psychology)</term><term>Elephantiasis, Filarial (therapy)</term><term>Female</term><term>Focus Groups (utilization)</term><term>Health Literacy</term><term>Health Services Needs and Demand</term><term>Humans</term><term>Male</term><term>Medical Staff</term><term>Middle Aged</term><term>Professional-Patient Relations</term><term>Qualitative Research</term><term>Quality of Life</term><term>Reproducibility of Results</term><term>Research Personnel</term><term>Surveys and Questionnaires (standards)</term><term>Young Adult</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Adulte</term><term>Adulte d'âge moyen</term><term>Agents de santé communautaire</term><term>Bangladesh</term><term>Besoins et demandes de services de santé</term><term>Compétence culturelle</term><term>Compétence informationnelle en santé</term><term>Corps médical</term><term>Documentation ()</term><term>Documentation (normes)</term><term>Enquêtes et questionnaires (normes)</term><term>Femelle</term><term>Filariose lymphatique ()</term><term>Filariose lymphatique (psychologie)</term><term>Groupes focalisés (utilisation)</term><term>Humains</term><term>Jeune adulte</term><term>Mâle</term><term>Personnel de recherche</term><term>Qualité de vie</term><term>Recherche qualitative</term><term>Relations entre professionnels de santé et patients</term><term>Renforcement des capacités ()</term><term>Reproductibilité des résultats</term><term>Sujet âgé</term></keywords><keywords scheme="MESH" type="geographic" xml:lang="en"><term>Bangladesh</term></keywords><keywords scheme="MESH" qualifier="methods" xml:lang="en"><term>Capacity Building</term><term>Documentation</term></keywords><keywords scheme="MESH" qualifier="normes" xml:lang="fr"><term>Documentation</term><term>Enquêtes et questionnaires</term></keywords><keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Filariose lymphatique</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Elephantiasis, Filarial</term></keywords><keywords scheme="MESH" qualifier="standards" xml:lang="en"><term>Documentation</term><term>Surveys and Questionnaires</term></keywords><keywords scheme="MESH" qualifier="therapy" xml:lang="en"><term>Elephantiasis, Filarial</term></keywords><keywords scheme="MESH" qualifier="utilisation" xml:lang="fr"><term>Groupes focalisés</term></keywords><keywords scheme="MESH" qualifier="utilization" xml:lang="en"><term>Focus Groups</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adult</term><term>Aged</term><term>Community Health Workers</term><term>Cultural Competency</term><term>Female</term><term>Health Literacy</term><term>Health Services Needs and Demand</term><term>Humans</term><term>Male</term><term>Medical Staff</term><term>Middle Aged</term><term>Professional-Patient Relations</term><term>Qualitative Research</term><term>Quality of Life</term><term>Reproducibility of Results</term><term>Research Personnel</term><term>Young Adult</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Adulte</term><term>Adulte d'âge moyen</term><term>Agents de santé communautaire</term><term>Bangladesh</term><term>Besoins et demandes de services de santé</term><term>Compétence culturelle</term><term>Compétence informationnelle en santé</term><term>Corps médical</term><term>Documentation</term><term>Femelle</term><term>Filariose lymphatique</term><term>Humains</term><term>Jeune adulte</term><term>Mâle</term><term>Personnel de recherche</term><term>Qualité de vie</term><term>Recherche qualitative</term><term>Relations entre professionnels de santé et patients</term><term>Renforcement des capacités</term><term>Reproductibilité des résultats</term><term>Sujet âgé</term></keywords><keywords scheme="Wicri" type="geographic" xml:lang="fr"><term>Bangladesh</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><sec><title>Purpose</title><p>The purpose of this study was to conduct focus groups to operationalise the construct of quality of life (QOL) for people living with lymphatic filariasis (LF) in Bangladesh to develop culturally valid items for a Bangladeshi LF QOL tool.</p></sec><sec><title>Methods</title><p>Ten focus groups were conducted with a stratified purposeful sample (<italic>n</italic> = 60) of LF patients (3 focus groups, <italic>n</italic> = 17), doctors (1 focus group, <italic>n</italic> = 5), nurses (1 focus group, n = 6) and other hospital staff (1 focus group, <italic>n</italic> = 5), community leaders (2 focus groups, <italic>n</italic> = 14), community volunteer health workers (1 focus group, <italic>n</italic> = 5) and Bangladeshi LF researchers and planners (1 focus group, <italic>n</italic> = 8). Focus group methodology was informed by local culture in consultation with cultural mentors and local advisors, often going against standard focus group procedures. Data were collected through note taking, audio taping, transcripts, observational notes and a reflection diary. Open coding of transcript data was completed until data saturation was achieved.</p></sec><sec><title>Results</title><p>Forty-three constructs were identified through the focus groups that had not previously been identified in the literature, including constructs relating to environmental supports and barriers, activities, participation and psychological impacts. There were marked differences between the impacts reported by different groups, highlighting the need for a comprehensive purposive sample. In particular, contributions from participants who would not traditionally be viewed as “experts” were vital.</p></sec><sec><title>Conclusions</title><p>The use of focus groups strongly contributed to the operationalisation of the concept of QOL in Bangladesh for people living with LF. Use of literature review or expert opinion alone would have missed vital constructs.</p></sec></div></front><back><div1 type="bibliography"><listBibl><biblStruct></biblStruct><biblStruct></biblStruct><biblStruct><analytic><author><name sortKey="Dreyer, G" uniqKey="Dreyer G">G Dreyer</name></author><author><name sortKey="Addis, D" uniqKey="Addis D">D Addis</name></author><author><name sortKey="Aguiar, A" uniqKey="Aguiar A">A Aguiar</name></author><author><name sortKey="Bettinger, J" uniqKey="Bettinger J">J Bettinger</name></author><author><name sortKey="Dreyer, P" uniqKey="Dreyer P">P Dreyer</name></author><author><name sortKey="Luiz, A" uniqKey="Luiz A">A Luiz</name></author><author><name sortKey="Miguel, S" uniqKey="Miguel S">S Miguel</name></author><author><name sortKey="Neves, M" uniqKey="Neves M">M Neves</name></author><author><name sortKey="Peterson, A" uniqKey="Peterson A">A Peterson</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Addiss, D" 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uniqKey="Minichiello V">V Minichiello</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Fontana, A" uniqKey="Fontana A">A Fontana</name></author><author><name sortKey="Frey, Jh" uniqKey="Frey J">JH Frey</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Patton, Mq" uniqKey="Patton M">MQ Patton</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Nabi, Rl" uniqKey="Nabi R">RL Nabi</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Charlton, Ji" uniqKey="Charlton J">JI Charlton</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Schipper, H" uniqKey="Schipper H">H Schipper</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Hawthorn, J" uniqKey="Hawthorn J">J Hawthorn</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Tran, T" uniqKey="Tran T">T Tran</name></author></analytic></biblStruct><biblStruct></biblStruct><biblStruct></biblStruct></listBibl></div1></back></TEI><affiliations><list><country><li>Bangladesh</li></country></list><tree><noCountry><name sortKey="Gordon, Susan" sort="Gordon, Susan" uniqKey="Gordon S" first="Susan" last="Gordon">Susan Gordon</name><name sortKey="Gray, Marion" sort="Gray, Marion" uniqKey="Gray M" first="Marion" last="Gray">Marion Gray</name><name sortKey="Speare, Rick" sort="Speare, Rick" uniqKey="Speare R" first="Rick" last="Speare">Rick Speare</name><name sortKey="Zeldenryk, Lynne" sort="Zeldenryk, Lynne" uniqKey="Zeldenryk L" first="Lynne" last="Zeldenryk">Lynne Zeldenryk</name></noCountry><country name="Bangladesh"><noRegion><name sortKey="Hossain, Moazzem" sort="Hossain, Moazzem" uniqKey="Hossain M" first="Moazzem" last="Hossain">Moazzem Hossain</name></noRegion></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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